A Dementia Diagnosis:
Understanding Next Steps
A Dementia Diagnosis:
Understanding Next Steps
A dementia diagnosis can be life-altering. Learn how to take proactive steps to manage the condition, access support resources, and plan for the future.
Receiving a dementia diagnosis can be overwhelming. However, knowing what support is available and taking proactive steps can significantly ease the journey.
In the UK, approximately 944,000 people live with dementia. This figure is projected to rise as the population ages. Understanding the support options available to you or a loved one can make a substantial difference in navigating this challenging experience.
Understanding Your Condition:
After receiving a dementia diagnosis, it's crucial to have a clear understanding of your condition and the support available to you. Your healthcare provider should provide you with written information about:
- Your specific type of dementia and how it may impact your daily life.
- Any additional tests, treatments, therapies, or activities that could potentially alleviate symptoms or improve your quality of life.
- The healthcare professionals who will be providing your care, including the primary care coordinator.
- Support groups and charities that offer assistance and resources for people with dementia and their caregivers.
- The potential impact of dementia on your driving abilities and the necessary steps to take.
- Your rights and entitlements in the workplace, both for current employees and job seekers.
- Opportunities to participate in dementia research studies.
If you don't need this information immediately, don't hesitate to ask for it at a later date.
Discussing Your Preferences with Your Doctor:
An open and honest conversation with your doctor is crucial.
Here are some key areas to consider:
- Information sharing: Discuss who you consent to share your medical information with and what specific details you're comfortable being shared.
- Future support: Establish a plan – who should you contact if your needs change and require further support or advice?
- Follow-up appointments: Determine whether you want to schedule future check-ins with your doctor to monitor your condition, and if so, at what intervals.
Planning for the Future:
While a diagnosis of dementia can be overwhelming, planning your care can help ensure your wishes for the future are known and understood. Resources such as Dementia UK's Next Steps Checklist can guide you through essential steps, including exploring financial benefits and having important discussions with your family.
Support for Carers:
The impact of caring for someone with dementia can be significant. Carers are entitled to a Carers' Assessment from Essex County Council to evaluate their needs and determine the support available.
Remember, prioritising your own health and well-being as a carer is essential. Explore the various training programs, support groups, and resources tailored to support carers - see below.
Additional Resources:
Numerous resources offer valuable information and support for individuals with dementia and their families:
Remember, a dementia diagnosis doesn't define your future. With knowledge, planning, and access to the right resources, individuals with dementia and their loved ones can manage this condition effectively.